Tell us about yourself and the patient in your life:
Cora turns 10 this year and is in the 4th grade. We live in Littleton, Colorado. Cora loves music (especially the guitar), horseback riding, swings, swimming and playing with cars. She is happy, curious and funny and is a great big sister to Chloe. Her favorite foods are hummus, meatballs and scrambled eggs with salsa. Cora got her SMC1A diagnosis when she was 4 years old. She uses an AAC device to communicate but she’s also very good at getting her point across! If you scratch her back or rub her feet, she’ll ask you for more over and over again. 🙂
What is your hope for the future for your loved one:
I hope that Cora is surrounded by a loving and caring community of friends and family and gets to do the things that make her happy. My biggest wish for Cora is for her to be able to express her feelings, thoughts and needs in a way that other people can understand her. Her laugh is contagious and she lights up our home. Cora is one of the strongest people I know, along with all our SMC1A sunshine sisters.