Tell us about yourself and the patient in your life:
I am the mother of Iselin. Sche is 6 years old and we live in Belgium, Europe.
We are a family of 4. Iselin had one older sister, Ada.
Iselin had smc1a (cdls). She was born with a DORV-heart.
No epilepsy So far. Iselin is a very happy girl. She always smiles and loves people. Her mental age is around 1,5.
What is your hope for the future for your loved one:
Scares for the future. Who will take care of her when we are too old or dead.