Tell us about yourself and the patient in your life:
Helena is a happy little girl with a friendly sweet personality. Like any other child, she wants to feel loved, included, and respected in this world. Her favorite activities are swimming, hiking, swinging, and playing with puzzles. She loves accordion music, books, and dot art. Helena is located in San Francisco CA and receives her care from UCSF medical center.
What is your hope for the future for your loved one:
For most, I want Helena to be able to communicate effectively with those around her, get relief from sensory needs, sleep and pick up skills at the same speed as her typical peers. If she is able to do that, she is able to live an independent, meaningful and happy life. I hope we can accelerate research to find effective treatments that can help Helena achieve these goal.